Category Archives: Chronic Illness

Can you help me understand any complications of hypothyroidism found in two siblings at infancy?

Can you help me understand any complications of hypothyroidism found in two siblings at infancy? There are some excellent web sources for congenital (congenital means from birth) hypothyroidism. ¬†There is a trusted source, the National Institutes of Health in the … Continue reading

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How can I reduce the stigma surrounding my child’s condition?

I parent a multi-exceptional teen with neurofibromatosis and several other issues. My question is about helping others to understand and more readily accept people with NF who have very visible issues. Some people with NF have encountered outright rudeness, been … Continue reading

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How can I get financial support for my son with Marfan’s Syndrome?

Who should I see about fund raising for my son who has Marfan’s Syndrome? He needs glasses, special shoes, and he also has scoliosis and will require heart surgery when he’s around five years old. He is three-and-a-half now and … Continue reading

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