Drs. Patrick McGrath (Centre for Research in Family Health) and Lucy Lach (McGill University), are working together as part of the CHILD-BRIGHT Network to create an online parenting program to improve the lives of children with neurodevelopmental disorders and their families. An important goal of the CHILD-BRIGHT Network is to involve families as experts in all phases of research projects. In our case, we are looking to connect with parents of children with neurodevelopmental disorders who also have trouble with their emotions and behaviours. By creating the Strongest Families Neurodevelopmental online parenting program, we want to provide the kind of support you need to help manage these problems. To do this right, we need your input.
If you are the parent of a child with a neurodevelopmental disorder such as:
- Cerebral Palsy
- Down’s Syndrome
- Global Developmental Delay
- severe learning disability
- or any other diagnosis that affects how your child gets around, communicates their ideas, processes what they hear, or remembers things
AND your child has problems regulating their emotions or behaviours (for example, has anxiety, attention problems, problems with bedtime or mealtime routines or mental health problems), you may be interested in joining our Parent Advisory Committee.
Who are Parent Advisors?
Parent Advisors are real parents. No other experience is necessary. We need to hear from parents who live in different places across the country and from all walks of life.
What to Expect
Briefly, your role is to provide feedback, opinions and recommendations on what the online program should look like, help us to connect with families and/or health care providers who are interested in testing the program and to help spread the word about the project.
If this sounds like something that you are interested in, please read more about what to expect in the Terms of Reference. To apply to the committee, please fill out the application form on the last page of the Terms of Reference, save the form and email to the research coordinator, firstname.lastname@example.org.